Showing posts with label mthfr. Show all posts
Showing posts with label mthfr. Show all posts

Monday, November 19, 2012

wishin' and prayin' and hopin'

It's been a crazy month. I know I've been hugely slack on blogging, but now that I've left the first trimester behind and I'm hoping entering better weeks ahead, I'm hoping to get back onto my feet. I've been in a daze of doctors visits, speech therapy with G, toddler-raising, teaching, and taking classes.

I'm about to finish my seventh week of Lovenox shots to counteract my three clotting factors. To put it mildly, the experience has given me a whole lot of respect for people with diabetes. I don't know how they go through that may shots a day with no end in sight. At least I know my shots won't last forever. But it's amazing what you'll go through when you have no choice, when you have to do it, and especially when you have to do it for the health and life of your child.

So every time I stick the needle in, I think about the baby and how I'm one shot closer to holding him or her in my arms.

There are some things I've learned about taking Lovenox that I wish I'd known ahead of time.
  1. Put the needle in slowly. You don't want to jab that half-inch thing in there. It seems terribly in theory to do it this way but trust me, you'll feel like you have more control. And don't worry about that weird bendy thing your skin will do before the needle finally breaks through your skin - no, it won't be difficult to puncture your skin.
  2. Ice liberally before and after. Like at least ten minutes before and after. If you don't want it to sting like a mofo afterward, you'd better ice.
  3. Oh yeah, the medicine will sting. It stings much worse than the needle going in (most of the time). The stinging will take your breath away, but don't forget to keep breathing and stay calm. When it hurts too much, stop putting the medicine in and wait a moment. It doesn't hurt to keep the needle in, so take your time when pressing the plunger. The first time, it stung for over 30 minutes. After that, I injected much more slowly and the stinging time has decreased.
  4. You'll bleed so be prepared. Keep tissues handy and tiny bandaids if you get a bleeder.
  5. Do the shots yourself. The hubs did mine for the first two weeks because I was a big chicken, but I swear, it's less traumatic to do it yourself. My hands were shaking so badly when I did my first one, but I feel like a pro by now.
  6. It hurts, but it doesn't hurt forever. The stinging eventually fades and you'll get a reprieve until you have to do it again the next day.
Also, the experience of giving yourself a Lovenox shot changes each time.

Sometimes it's a bleeder. When you take the needle out, a big bubble of blood follows. Don't put too much pressure on it as the bleeding will eventually stop on its own and you don't want to cause too much bruising.


Sometimes it's a bruiser. Luckily, I haven't gotten many of these, and only one has given me a huge bruise.


Sometimes it stings so badly you think you can't stand it. Along with the stinger can come the oh-my-god-this-needle-is-huge moment when that baby burns all the way in.

And then, every once in a while, you'll get the easy. The injection that you barely feeling going in, that hardly burns at all, and the only way you can identify the injection sight is by the tiny red dot.

But I'll take stingers and bruises every time if it means a healthy baby at the end of the journey. I know these shots will be like labor, and the memories of pain will fade with time. I can't feel the baby yet, but I know it's in there, bouncing around on my uterus and wiggling those skinny limbs like a crazy monkey.

So I let out a long breath as I slide the needle in. And I make a wish.

Friday, August 17, 2012

where do I even start?

The last couple of days have been a whirlwind of revelations and sadness. If you're tired of hearing about my miscarriages and related troubles, you probably want to move on. I promise the posts for the rest of the month will turn to happier subjects.

On Tuesday, I got a positive pregnancy test. It was so faint that we really thought we were just seeing things, so we didn't tell anyone and quietly hoped. I did call my OB and got an appointment to come in for bloodwork the next day.

On Wednesday, I got more positive pregnancy tests, this time much more obvious. I had my blood drawn to test my HCG levels, then headed up to my first visit with maternal/fetal medicine. Dr. K was pretty awesome; she actually has the same OB/GYN as me, which was great. We went over everything my test results showed, which was more than I had originally thought.

I knew that I had one genetic marker for Factor V Leiden, a disorder that can cause blood clots. Dr. K was pretty sure this was why G only weighed 6.3 ounces at 38 weeks and why I got pre-eclampsia with him. She was amazed that I didn't get pre-e earlier. :( Another reason I'm so so thankful for my healthy toddler!

However, I discovered that I have two markers for MTHFR. I didn't hear which kind, but she said it was not the "worst type" but the "medium." Since MTHFR blocks the absorption of folic acid, this might have been what caused baby #2's base of the brain problems. We'll never know for sure, but there you go. I also have two markers for PAI 4G/4G, which she said wasn't a big deal except when combined with other factors.

So, awesome, right?

Anyway, we formed a game plan for my next successful pregnancy:
  • 4000 mcg extra folic acid
  • 40 ml of Lovenox in a daily injection
  • 500 mg extra calcium (once I start Lovenox)
  • 1 daily baby aspirin during pregnancy (and for the rest of my life)
  • Lovenox is started as soon as we get a heartbeat at 6-7 weeks. I would get bloodwork and an ultrasound done every month to check the baby and my red blood cell counts. At 32 weeks, the ultrasounds become bi-weekly.
  • Switch to Heparin before delivery so I could have an epidural if wanted or stay awake during a c-section.
  • Induction around 38 weeks. I would then switch over to blood thinner in the form of pills for the next 6 weeks.
Whew! A mouthful, right? But it's worth it, if it'll get us another baby... Wednesday was also baby #2's due date. I did break down in Dr K's office because there was a lot of talk about baby #2. Also, the office was the same one where we had our extensive ultrasound to diagnose baby #2's miscarriage. Stepping into that waiting room literally took my breath away (we had no idea), and I'm pretty sure the hubs cursed.

On Thursday, I had another positive pregnancy test, but it was fainter. I called my OB for my test results. The nurse called back to say that my blood HCG test had came back negative. In fact, my HCG was only 3. Of course, I was shocked. I thought maybe my tests were too faint and they weren't getting darker, but I thought maybe the baby was just a late implanter. Not so.

Later that day, I started having horrible backache and spotting.

Today, I'm still spotting. I took one pregnancy test this morning which was negative. I'm guessing I'll get my period eventually... or the miscarriage... or whatever you call it when it's a chemical pregnancy (which, by the way, is a nasty term for a very early miscarriage). Should I call it baby #4? I don't even know. Maybe my body just wasn't ready to be pregnant again two months after my last miscarriage? I don't know that either. All I know is that I'm tired of being on the shit side of life's percentages of chance. I want something to go right for once. I need it to go right.

Anyway, I'm gonna take a break from talking about all of this. We'll start trying again immediately, but of course it'll be about a month before we know if we're successful. All of this waiting definitely doesn't help.
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